Saturday, November 3, 2012

Long time no post!

Well it has been a long time since I last wrote on my blog... mostly because it would depress me or I would forget what I was talking about or just get distracted by the fly buzzing around my room. Oh and I added a email subscribe button and pictures!

There is no way around the cold truth of CFS/ME. it SUCKS! For teens, it tends to takes these high achieving, athletic, active kids and flips their life like a light switch. We have our good days where we can go out and look good for the world, but then everyone around us wonders where the illness really is. They don't see us in bed paying for that day out with headaches and dizziness and all the pain that comes along with it. Another side of CFS/ME that people don't see is the emotional side. Sadness, irritation, anger, depression, hurt, loneliness, and so much more. Unless you have it you can only imagine what its like.

This year would have been my senior year. I feel like it was my fault I had to drop out of school. As if I didn't fight hard enough to stay in it, but with CFS fighting against it only makes it worse. I'm sad because I'm missing what was supposed to be the best year of high school. Homecoming week was rough. I was added to various school pages for seniors and it was like, "do you guys even notice that I don't go to school?!" Everyone was making senior shirts and there was a toga contest and the multiple posts about "Senior year homecoming." I think facebook sucks just because its a reminder of everything I'm missing. Pictures are definitely the worst though. Seeing your friends get ready without you and going to dinner together and everything else that goes with it, it is a bit depressing. I know prom season and graduation are going to be sad as well. I never got to go to prom and graduation is graduation.

People say that years from now you're most likely not going to be friends with any of your friends from high school. It has definitely filtered my friends, but it's sad that very FEW of my "friends" checked up on me. Thank goodnes for my wonderful boyfriend who kept me sane and was there with me, even carrying me up and down the stairs of my house. My friend, Maddie, has also been there to lift my spirits. So thanks, Maddie and Caleb!

Overall my high school experience was a short year and a half of memories. Second semester of my sophomore year I missed 1-2 days a week until I was out for a month in March from mono. The rest of that year was spent trying to make up work and catch up and Junior year was just and epic fail if I've ever seen one; Two weeks of good attendence then it was all downhill from there. Half the time the only reason I would show up was so I could go to gymnastics practice. Gymnastics will forever be the best memories of my high school life. Wonderful coaches and the best team despite the drama, but what team of girls doesn't have drama? I wish i could have gone back this year and overwrite the terrible last meet I had last year. I wasn't ready to stop gymnastics. I thought I would go back to school second semester and have gymnastics as a class so I could practice for this year... hahaha! That was back when I didn't take my illness seriously. Anyways i've seen pictures of the team this year and it just is incredibly upsetting and it's probably the worst part of not being in school. Didn't matter where I was in the line up I loved the team and doing my best... and jumping around on 4 inches of wood! ...bad idea for someone with POTS (Postural orthostatic tachycardia syndrome, aka the reason my heart rate goes from 85 to 110-140 after standing for five minutes).

HOWEVER, I'm starting to get better. I'll hopefully take my GED next week and take a class or two next semester at a community college. Upside to this is I have no clue what I want to do with my life and I can figure that out BEFORE I go to a university. A university is still in the big picture, but might as well get the basics done! See look, say this stuff has already put me in a better mood. This is how my life is, and I can't change it; I can only change the way I look at it. So, I'm going to pray that I continue to get better and pray for everyone else to get better as well. Pray that this gets easier to deal with and that I will be a little more understanding to those who also have hard lives. A good reminder is that my life could be worse and as long as nobody else in my family gets this i'm good. sister, that one is for you.. i FORBID it. and mom. you too. :)

"Let your hope make you glad. Be patient in time of trouble & never stop praying" Romans 12:12
 

6 comments:

  1. Gabby, thank you for posting this! You will have an unusual life, that's clear. My hope for you is that you will continue to improve and will be able to relish the good times more fully because you know their true value.

    ReplyDelete
  2. Well done for pulling yourself through the bad times and choosing to look at life in a constructive way! Managing this illness is a great challenge with many lessons to learn. Choose to tackle it one small step at a time and you will improve! Have patience, be kind to yourself and your life will get better. It might not turn out exactly how you might plan, but you can choose to make it worthwhile!

    Don't give up hope that one day you could recover significantly, but don't expect this to happen quickly!

    Good luck! Wishing you improving health, happiness, joy and laughter!

    Love your pictures by the way!

    ReplyDelete
  3. So glad to hear you are feeling a little better Gabby...and thanks for posting. It's often difficult for my daughter, who is only 13, to talk about how it feels to be sick so it means a lot to me when I can get ideas from you and others. I love the cat picture joke..and your new dog looks so sweet...I'm sure she is great company. Take care and I hope you can see the light at the end of the tunnel.

    ReplyDelete
  4. Hey Beautiful Girl,
    Just read your entire blog cuz your momma posted your last entry on fb and I am agog. You are such an intelligent and articulate young lady! The frustration and helplessness you feel as you watch your peers glide through the life that you once took for granted is crystal clear in your words, and spreading understanding of CFS is so important! I'm going to share your blog with a teen girl in my area that has also dropped out of school due to CFS, and I know it will give her some comfort.

    You don't really know me but I was with your momma in China and we met you together. At that moment the earth shifted and not only was your life forever altered, but so was your mother's. She is a wise and introspective woman who is 100% committed to you and your siblings. I am so glad that you have her as a mother! But trust me when I say that YOU are the person that completely changed the focus of your mother's life and she wouldn't have it any other way. So lean on her and know that she understands even when it seems like no one does. You have lost much; yet you still have a grateful heart. You are loved by family and friends, and even people you don't know like me. Hang in there - you will slowly come through this, wiser AND stronger. In the meantime, keep spreading the light through your words and let people love you <3

    p.s. tell your mom a blue bird just landed outside my window :)

    ReplyDelete
  5. Gabriella,
    I enjoyed reading your blog post. Thank you for taking the time to share your experiences. We think of you often and follow your mom's posts on FB. I am sorry that you have had to struggle through the past few years. We miss you and your lovely family, and will get in touch to visit with you soon!
    Merie and Mariah

    ReplyDelete
  6. You expressed yourself so well here, Gabby. I am so sorry for all that you have lost - I completely understand because my son, Jamie, feels the same way about his Jr. and Sr. years of high school.

    But you have a wonderful attitude now, and I am thrilled to hear that you have been improving!! Jamie missed most of the last 2 years of high school and is now in college, living on campus (!) and taking 3 classes. It feels like a miracle to us.

    So, you are right to be looking forward. There is always some grieving necessary for what's been lost, but your optimism is shining through in this post. We are rooting for you!!

    Sue

    Live with CFS

    ReplyDelete